June 10, 2011

Our Girl

If you are here visiting from Kelly's Korner Blog, Thank you!

I linked my blog to her special needs families entry, and wanted to give you an easy to read version of our daughters SN.

We adopted Jadyn from Jaingsu China in August 2009. She was 2 yrs. 4 months old and weighed a tiny 21 pounds.

Jadyn was born with Transposition of the Great Arteries, a large VSD and Pulmonary Stenosis. We consulted with 2 pediatric cardiologist's and was told she would need 2 open heart surgeries to correct the defect. Also that she would have a single ventricle her entire life.

She had open heart surgery 1 month to the day after we brought her home from China. She was in the hospital for a short 72 hours.

She went in the hospital with oxygen saturation's at 77%, she was blue and had very little energy. She came out of surgery pink and with her oxygen sats. around 84%. She had so much more energy.

She would need one more surgery once she hit 32-34 pounds, that was 11 months later.

Jadyn had her final corrective surgery in July of 2010, this surgery put her oxygen saturation's at 96-99% made her as pink as you and I and gave her the energy of any other 3 yr old.

She was in the hospital for 8 days.

It has been almost a year now since her last surgery, she is doing great.

She visits the cardiologist every 6 months for a check up and takes a baby aspirin daily. She also takes a low dose of high blood pressure medication, not because she has high blood pressure but because they want her BP very low, it's less work for her heart that way.

She has no restrictions, but she is still a Single Ventricle child.


Checking into the hospital for her first surgery


Jadyn today

I am more than happy to answer any questions you may have on our experience with a SN heart child.

2 comments:

Mélanie

I'm happy to read your post! We just came back from China and our daugther had her first surgery of three.Right now her saturation is between 80 and 85% but in China it was 70 and 75%. She have an extreme TOF, Pulmonary arteriosis, Patent ductus arteriosis and a very large vsd...we also found Digeorge syndrome!

So read about the beautiful story of Jadyn is helping me!

thank you

http://lapetitesoeurdoceane.blogspot.com

Suzette

So glad to see she is doing so well. We prayed for her last year during her surgery and as we also prepared for surgery. Our daughter is also doing great and you would never know she had a heart defect until you see her beautiful scar. It is truly a scar that is our reminder of how God has healed her and given her a second chance at life for which we are so thankful!

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